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Topics A to Z
The following presentations were developed
for Hospital Grand Rounds and
discuss common topics associated with
providing medical homes for children and youth with special
healthcare needs. They provide
a framework for which you may build such a topical presentation
for residents and child health care professionals.
Chronic Illness | Medical
Homes in Practice | Advocacy
| EMS | Family-Centered
Care | Financing for CSHCN
| Specific Conditions
General
CSHCN
Chronic Illness Old and New Ideas
Presentation
Medical Home Grand Rounds
March 28, 2003
St. Charles Medical Center
Overview
1. Chronic Care Model and the Medical Home Model
2. Who are CSHCN?
3. How do you become a medical home provider?
Medical
Homes in Practice
Using Partnerships as Catalysts for Change: Establishing
Medical Homes at the Pediatric Office Level Presentation
Richard C. Antonelli, MD, FAAP
Assistant Professor of Pediatrics
UMASS Medical School
June 2003
Overview
1. Office and family perspective on the medical home
2 Collaborative and community-based care
3. Why do this?
Baystate Pediatric Group The Mass.
Care Coordination Project Presentation
Matthew Sadof, MD FAAP
Medical Director, Pediatrics
High Street Health Center
Project Director
May 17, 2003
Overview
1. Practice Characteristics and intent of the project
2. Strategies, tools
3. Accomplishments and lessons learned
Incorporating Effective Chronic Condition Management
and Generalist-Specialist-Family Collaboration in the Medical
Home (1.5 MB) Presentation
W. Carl Cooley, MD, FAAP
Co-Director, Center for Medical Home Improvement
Medical Director, Crotched Mountain Rehabilitation Center
Christopher Stille, MD, MPH, FAAP
Assistant Professor of Pediatrics
University of Massachusetts
Overview
1. What is Chronic Condition Management?
2. Collaborating with Specialists
3. Communication and quality of care for CSHCN
Advocacy
State and Local Advocacy Presentation
Focuses on the role of the pediatrician as an advocate for
child health. You can view this component of the Every
Child Deserves a Medical Home curriculum as well as
other parts of the curriculum by
clicking here.
Overview
1. Understand why advocacy is so important.
2. Identify advocacy action-steps for individuals.
3. Encourage partnerships to enhance advocacy action.
4. Apply advocacy skills to local case study.
Materials
1. Training
Pediatricians to Become Child Advocates
2. Families
as Advocates: Being a Health Advocate for Your Child With
Special Needs
3. 10
Tips for Child Advocates 
4. State
Governmental Affairs Handbook Chapter 11: Advocacy Communications
5. Pediatricians
Partnering With States To Assure That Children With Special
Health Needs Are Provided Appropriate Services: The Vermont
Experience With Managed Medicaid
6. Working
to Improve Mental Health Services: The North Carolina
Advocacy Effort
7. 10
Steps for a Successful Legislative Visit
8. Eight
Do’s and Don’ts for Non-Profits in an Election
Year
The Pediatrician and Advocacy for
Children with Special Health Care Needs
Presentation
Ron S. Levin MD
Center for Infants and Children with Special Needs
Cincinnati Children's Hospital Medical Center
On-going Residency Teaching Program
Overview
1. Who are CSHCN and why is advocacy needed?
2. Background and history for pediatricians being advocates
3. Barriers to advocacy
4. Specific issues and case examples
Advocacy and Lobbying at The State
and Local Level Presentation
Thomas W. Pendergrass, MD, MSPH
Chair, Committee on State Government Affairs, American Academy
of Pediatrics
May 18, 2003
Overview
1. Explore the opportunities for physician involvement
in advocacy
2. Learn ideas for how to get involved in your community
3. Discover why physicians should lobby and what it takes
Materials
The
Elements of Effective Testimony
The intent of this workshop is to provide an overview
of testifying before a legislative entity (or quasi- legislative,
such as a commission, or executive branch entity). Participants
will spend approximately 45 minutes reviewing the fundamentals
of "how to testify."
Tips
for Crafting an Effective Message
Tips on how to develop a fact sheet, write a letter to
an elected official and contact your members of congress.
Emergency
Medical Services and CSHCN
Emergency Medical Services and CSHCN Presentation
Ron S. Levin MD
Center for Infants and Children with Special Needs
First Annual EMSC Continuing Education Conference
October 3, 2003
Cincinnati Children's Hospital Medical Center
Overview
1. General facts about chronic illness
2. Care coordination and the role of the primary care
provider
3. Maintaining the medical record and emergency information
forms
4. Other issues that may effect EMS
Family-Centered
Care
Building Medical Homes with Family-Centered Improvement
Teams (8.02 MB) Presentation
Jody Couillard, BS
Care Coordinator, Exeter Pediatric Associates
Ann Dillon, MEd, OTL
Parent Partner, Exeter Pediatric Associates
Sandy Julius
Parent Partner, Hagan and Rinehart Pediatrics and Adolescent
Medicine
Jeanne McAllister, RN, MS, MHA
Co-Director, Center for Medical Home Improvement
Children's Hospital at Dartmouth Hitchcock Medical Center
Greg Prazar, MD, FAAP
Pediatrician, Exeter Pediatric Associates
Jill Rinehart, MD, FAAP
Pediatrician, Hagan and Rinehart Pediatrics and Adolescent
Medicine
Overview
1. Medical Homes - in action
2. Essential improvement strategies
3. Child, family and practice outcomes
4. Take home “habits” to build your Medical
Home
Materials (Coming Soon)
Gaining Understanding of Children and Families'
Needs and Perspectives
Children with Special Health Care Needs Identification
Criteria
Homes Complexity Index
Office Visit Family Mini Survey
Agenda
Hagen and Reinhar Pediatricians
Family-Centered Care: A Family-Professional
Collaboration
Presentation
Ron S. Levin MD
Center for Infants and Children with Special Needs
Cincinnati Children's Hospital Medical Center
On-going Residency Teaching Program
Overview
1. Defining Family-Centered Care
2. Data on CSHCN and Care Coordination
3. Examples
4. Barriers and Opportunities
In Our Own Words: A Guide for Using Family
Stories to Teach Family-Centered Care
Medical Students and residents learn family-centered care
directly from families. When they begin their own practices
they will draw upon the wisdom of your words and the power
of your stories to guide them in their work. Click
Here to download the handbook.
Created by Parent to Parent of Vermont www.partoparvt.org
in collaboration with the Boyle Community Pediatrics Program,
with funding from the A. K. Watson Charitable Lead Trust
THE PURPOSE OF THIS HANDBOOK IS TO:
- Support the overarching goal of increasing practitioners
ability to care for children with chronic conditions.
- Provide a framework for families to share their knowledge
and expertise in caring for their child with special needs.
- Help families organize their stories around central
themes.
- Prepare families for their role as members of family
faculty programs.
HOW FAMILIES WILL USE THE HANDBOOK:
- This handbook identifies seven skill areas essential
to the practice of family-centered care. Families will
use the handbook as a guide, as they draw upon examples
from their own lives, to illustrate how these skills can
best be practiced.
- Participating families will attend orientation sessions
to practice sharing their stories and to develop strategies
for teaching the seven skills.
- Families will teach family-centered care in a variety
of ways, including: home visits, parent panel presentations,
small group discussions, and school and community visits.
Financing
for CSHCN
SURVIVOR®: Successfully Financing a Medical
Home Presentation
(1.55 MB)
Joel Bradley, MD, FAAP
Pediatrician, AAP CPT Advisor
Lois Kohrt
Director of Practice Management, Children's Hospital of
Philadelphia
Medical Home Crosswalk to Reimbursement
Presentation
Peggy McManus
MCH Policy Research Center
Washington, D.C.
www.mchpolicy.org
Overview
1. Build a stronger case for improved coding and ultimately
guaranteed payment for the added medical home services
provided to children with special health care needs.
2. National Survey of CSHCN results on health insurance
3. The Crosswalk to Reimbursement
Materials
The
Crosswalk to Reimbursement: This reimbursement tool
identifies the range of relevant codes that could be used
to finance components of a medical home and contains an
index of medical home codes and selected vignettes.
“DATA to DOLLARS” Presentation
Lois Kohrt
Overview
1. The Pennsylvania Story
2. Coding and documentation
3. Data collection: what to collect and how?
Shared Responsibilities Toolkit:Tools
for Building Partnerships to Improve Health Care Financing
for CSHCN Presentation
Susan G. Epstein
New England SERVE
Overview
1. Financing for CSHCN Overview
2. Why and how to collaborate with health plans?
3. How can the toolkit help identify CSHCN and improve
the quality of care?
Materials
The Shared Responsibilities Toolkit: Tools for
Improving Quality of Care for Children with Special Health
Care Needs (CSHCN) is available on the New England SERVE
Web site www.neserve.org
.
Specific
Conditions
Autism
Providing
a Primary Care Medical Home for Children with Autism
W. Carl Cooley, MD, FAAP
Associate Professor of Pediatrics, Dartmouth Medical School
Medical Director, Crotched Mountain Rehabilitation Center
Presented at the AAP National Conference and Exhibition,
October 2004
Overview
1. The Role of the Medical Home
2. Expectations of the Family:
Timeliness | Clinical quality | Advocacy | Information
and education
Autism
Spectrum Disorders: Communication and Language
Amy M. Wetherby
Dept. of Communication Disorders
Florida State University
Presented at the AAP National Conference and Exhibition,
October 2003
Overview
1. Review research on the communication and language characteristics
of autism spectrum disorders (ASD)
2. Discuss the critical role of pediatricians in screening
and diagnosis of ASD
Down Syndrome
Providing
a Primary Care Medical Home for the Child with Down Syndrome
W. Carl Cooley, MD, FAAP
Associate Professor of Pediatrics, Dartmouth Medical School
Medical Director, Crotched Mountain Rehabilitation Center
Presented at the AAP National Conference and Exhibition,
October 2004
Overview
1. Making the Diagnosis: Assessment and Genetics
2. Medical Issues and Family Support
3. Medical and Psychosocial Needs
4. Resources and References
Last Updated
June 2, 2006
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