Tools
for Youth
When/Where
To Start - Your Role in the Transition Process
Transition: Role of Youth
and Families
- Maintain an up-to-date portable
medical summary
- IHTP - Create a written health care transition plan
by age 14: what services, who provides, how financed
- Apply primary & preventive care guidelines
- Ensure affordable, continuous health insurance that
includes transition planning & care coordination.
Transition: Role of Physician
“ The physician’s prime responsibility is
the medical management of the young person’s disease,
but the outcome of this medical intervention is irrelevant
unless the young person acquires the required skills to
manage the disease and his/her life.”
- Ansell BM & Chamberlain MA. Clinical Rheum. 1998;
12:363-374
Presentation:
What’s
Health Got to do with Transition? EVERYTHING!
Washington, DC, April 29 2004. 
-Patti Hackett.
 Road to Self-Suffiency: A Guide to Entrepreneurship for Youth with Disabilities from the National Collaborative on Workforce and Disability (NCWD)/Youth
This Guide was developed to serve as a resource for organizations working with youth on career exploration and employment options, and policymakers who support youth programs through policy and practice. The Guide shows how entrepreneurship education can be implemented in programs and offers suggestions on how to introduce self-employment as an option for all youth, including youth with disabilities. In addition, this Guide offers a set of appendices with valuable resources and references. Designed for organizations and practitioners working with all youth, policy-makers, and parents looking for resources and information on economic self-sufficiency for their adolescent children. The Entrepreneurship Guide can be found at http://www.ncwd-youth.info/resources_&_Publications/entrepreneurship_guide.html
Vocational Assessment and Its Role in Career Planning from the National Collaborative on Workforce and Disability (NCWD)/Youth
This info brief discusses career planning and vocational assessment for transition-age youth. It focuses on the vocational domain and how assessment activities support career related activities. To review this document go to http://www.ncwd-youth.info/resources_&_Publications/information_Briefs/issue20.html
It's Your Future - Go For It! A Transition
Guide for Teens and Parents
Shriners Hospitals for Children Northern California developed
this booklet to assist both teens and their parents with
the transition to adulthood. The booklet has information
on three important parts of adult life: Health care, School
and Work. The first two sections are especially for teens
and their families, and the third section is for parents.
We hope you will review this information both together
and individually. Keep this booklet handy for frequent
use. Feel free to copy any of these pages and share with
others.
This training program is divided into
5 chapters: 1) Introduction to Health
Care Transition, 2) The Consumer Perspective,
3) School, Vocational, and Legal Systems,
4) Promising Practices for Health Care Transition
Developing Health Care, and 5) Transition Plans. Each
Chapter includes 4 or 5 presentations. Each slide show
presentation has an accompanying audio track and is about
15 minutes long. In addition, video clips, written documents,
and a resource section round out the educational experience.
Users can go through the training program at their own
pace; stopping and starting as they have time. A product
of Healthcare Transition Initiative at the University
of Florida
Working Together for Successful Transition: Washington
State Adolescent Transition Resource
Notebook
This notebook is a resource on transition from adolescence
to adulthood for young adults with special health care
needs and disabilities. Audiences likely to find this
information useful include families, students, school
personnel, community agency workers, health care providers
and other groups working with youth in Washington State.
The notebook is organized by sections based on content
such as post-secondary education, community participation,
and vocational rehabilitation. Each section contains individual
documents that may be downloaded as needed for individualized
use, as resource handouts for groups, or to make an entire
hard copy of the notebook.
Click here for more
information on care notebooks.
The National Collaborative on Workforce and Disability
for Youth (NCWD/Youth) has recently published a workbook
for youth with disabilities that helps youth develop
the knowledge and skills needed to make informed decisions
about disclosing their disability--decisions that can
affect their educational, employment, and social lives.
Health:
Taking
Charge Of Your Health Care 
Transition is a process to prepare you to live as independently
as possible, so this also means taking charge of your own
health care and:
-
Learning
About Your Condition Or Disability
-
Learning
How To Make Your Own Health Care Appointments
-
Speaking
Up And Asking Your Doctor Or Nurse Questions
Developed by: ICI
10
Easy Steps in Taking Charge Of Your Health Care -
This quick and easy fact sheet lays out 10 important steps
to consider when taking charge of your health care.
Questions You Want to Know About Your Health Care,
But Are Afraid to Ask: Get Answers
to some of the most frequently asked questions youths
have, regarding healthcare. These 6 questions make suggestions
on how to:
-
Select The Best Health
Care Provider For Your Needs
-
Prepare For An Appointment
-
Work With Health Professionals
To Get The Most Out Of Your Medical Plan
-
Gain Some Control Over
Your Health Care, And Make Decisions
-
Get The Information And
Help You Need To Deal With Your Health Concerns
-
Deal With Feelings About
What Is Happening With Your Body
Developed by: Washington State Adolescent Health
Transition Project (WSTP)
University of South Florida College
of Medicine - Health Care Transition Educational Materials
for Youth and Young Adults with Disabilities
The materials provide information and strategies to help
prepare teens and young adults to take increased responsibility
for their health care and to transition smoothly from pediatric
to adult-oriented health care. Materials include a comprehensive,
40+-hour
school-based curriculum written especially for high
school students who receive special education services.
Complete with structured reading assignments, activities,
vocabulary lists, tests, and a teacher's guide, the 8-unit
module can be integrated into core secondary school courses
(e.g., Health, Science, Life Management) or other classroom
settings. Also available is a health
care transition Information and Resource
Guide, designed as a companion piece for parents, caregivers,
educators, health care professionals, and other providers
who serve youth and young adults with disabilities or other
special health care needs.
The American Academy of Family Physicians has developed
a web site designed to provide health information to the
whole family, including teens.
The teen’s section includes information about a number
of childhood chronic health conditions, including sickle
cell, cystic fibrosis, diabetes and cerebral palsy. Each
brief condition specific entry includes information about
"what doctors do" to treat the condition; and
what teens can do to cope with the condition, and be healthier.
http://familydoctor.org/teens.xml
and Look under "more common conditions".
Improving the Health of Adolescents and Young Adults: A
Guide for States and Communities
The National Adolescent Health Information Center
at the University of California, San Francisco, in conjunction
with the CDC’s Division of Adolescent Health and HRSA’s
Office of Adolescent Health, introduces a new resource,
Improving the Health of Adolescents and Young Adults: A
Guide for States and Communities. Designed to aid efforts
in creating successful adolescent health programs, this
free guide covers topics such as building coalitions, using
data, assessing needs and assets, setting priorities, planning
and evaluating programs, working with the media, and fundraising.
To view the guide or order a hardcopy visit
nahic.ucsf.edu/
A video overview and introduction has been
added to the Health Care Transitions Training Site that
speaks directly to youth and young adults. This video features
Stephanie Kovacs, a 20 year old graduate student with special
health needs who has recently completed her own transition
from pediatrics to adult health care. Stephanie's engaging
introduction encourages youth and young adults to learn
how to speak-up for themselves, take a more active role
in their own health care, and be better prepared for their
own transition to adult health care.
To access this 5 minute video, go to:
http://hctransitions.ichp.ufl.edu/ddcouncil/training_home.php
Insurance and SSI Disability
HRTW Health Care and Insurance Information:
www.hrtw.org/healthcare/index.html
Learn about issues with no insurance, being dropped from
an insurer, and common barriers and solutions. This includes:
School:
Taking
Charge Of Your Education
At age 14, the law says that you have a right to participate
in school team meetings. By participating in these team
meetings you will be promoting for yourself, so you should
first:
-
Get To Know Your Rights
-
Start Thinking About Whether You Want
or Need More Schooling After High School
- Put Paperwork Together That Will Help You Reach Your
Goals
Developed by: The Institute for Community Inclusion
(ICI)
A
Student's Guide to the IEP
Being part of the team that writes your IEP is an important
thing to do. It's your education - be in on planning it!
This guide provides explanation on:
-
What's An IEP?
-
What's The Purpose Of An IEP?
-
Why Should You Participate In Your IEP?
-
5 Steps - You Need To Know To Help Develop
Your IEP
Developed by: The National Information Center
for Children and Youth with Disabilities (NICHCY)
Sex Education:
Sexuality
and Disability
Sexuality is an essential part of all of us no matter what
our age, gender, health or physical ability may be. A disability
does not decrease a person's sexuality and rarely does it
destroy his or her interest in being sexual. This web site
helps learn about:
- Sexual Health
- Male Changes
- Female Changes
- And More....
www.iwannaknow.org
The purpose of this Web site is to provide a safe, educational
and fun place for youths to learn about sexually transmitted
diseases (STDs) and their sexual health.
Sex, etc.
Produced by youths, this Web site answers the questions
you'd rather ask other youths. Topics include love and breakups,
sex and abstinence, contraceptives and STDs.
** If you have information or
resources to add, such as: How you got started, or some
great resources you have used in the process of transitioning,
please e-mail us at medical home@aap.org.
Last Updated
July 15, 2008
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