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Transition Tools for Families
Adolescent
Health Transition Project
The
Adolescent Health Transition Project provides information
on transitions from pediatric to adult health care for adolescents
with special health care needs. You can link directly to information
and materials below.
Education
Partners in Education
A three-hour self directed e-learning course to help parents
with children with developmental disabilities better understand
and maximize the benefits of special education services
and inclusion for their children, is now being tested.
Review
the course and provide your comments and feedback. A
user fee of $30.00 must be paid for the course before enrollment
can be completed. This fee gives access to the
course(s) for a two-month period of time.
The Healthy Student - A Parent's
Guide to Preparing Teens for the College Years
This
guide is available on the Society for Adolescent Medicine
web site. While this brochure is designed for the typical
teen (and not for the teen with a disability or chronic
health condition), it identifies and briefly addresses many
of the issues that are of concern to youth with special
health care needs who plan to attend college, including
insurance; medical records, prescriptions, confidentiality,
and student health services.
National Center on Secondary
Education and Transition (NCSET)
State
Information
Transition-related resources and education-related office
contact information for states and territories in the United
States. You will find manuals, toolkits, curricula, Web
sites and more for everyone involved in supporting the successful
transition of youth with disabilities to adult life.
Independent Living
Planning is the Key to Success
In Planning
is the Key to Success, parents learn why they need to
plan for the future, elements of a master plan, and how
to write a master plan for their child, step-by-step.
Centers
for Independent Living (CILS)
These Centers receive federal funding and "are non-residential
offices located around a state that offer guidance and support
people with disabilities, fight for the rights of people
with disabilities, and offer training and information on
living independently in the community."
Recruitment of Personal Care
Assistants for People with Disabilities
With assistance from consumers & Personal
Care Assistant’s participating in various Home &
Community Based Services waiver programs, the A.J. Pappanikou
Center for Developmental Disabilities (CT UCEDD) has produced
& directed a video aimed at recruitment of Personal
Assistants for people with disabilities. Included are perspectives
from individuals & family members representing various
disabilities & ages, explaining why personal assistants
are important parts of their daily lives, and why being
a personal assistant can be a challenging and rewarding
career. This recruitment tool will be available in VHS,
CD and DVD. This project was funded by CMS.
For more information, contact Christine Gaynor at gaynor@uchc.edu or 860.679.1534.
Assessment Tools/Check
Lists/Worksheets
The Casey Family Programs
Casey
Family Programs offers free online assessment tools
to measure a youth's life skills such as the Ansell-Casey
Life Skills Assessment (ACLSA). The ACLSA is an evaluation
of youth independent living skills. It consists of statements
about life skills that the youth and his/her caregivers
complete. Available in Spanish.
In 2001 Casey Family Programs—working with young
people in foster care, alumni of care, families, and other
stakeholders—published It’s My Life, a framework
to develop services for young people preparing to make the
transition from foster care to successful adulthood. It’s
My Life promotes a holistic approach to transition services.
Each guide will focus on one of the seven interconnected
life domains discussed in It's My Life, (Domains listed
below). The first guide available in PDF format is on Employment.
- Cultural and Personal Identity Formation
- Supportive Relationships and Community Connections
- Physical and Mental Health
- Life Skills
- Education
- Employment (Click here to download a copy of the guide)
- Housing
CHOICES Transitions Guidelines
The Shriners Hospitals – State Agency CHOICES project created transition guidelines for age groups: infants, 1-5 years, 6-10 years, and 11-21 years. Developmental Screening Tools and Care Plans by age groups are available for general orthopedic conditions, Juvenile Rheumatoid Arthritis, and Cerebral Palsy.
The Illinois Division of Specialized
Care for Children Transition
Information and Resources
This site provides access to information and forms developed
by DSCC, as well as other resources, including:
- The Transition Information Sheet for Families
- Teaching Sheets (Kentucky Commission for Children with
Special Health Care Needs)
- Transition Timeline (Office of Children with Special
Health Care Needs, Washington State)
- The Health Care Checklist (adapted from other health
care checklists) School to Work Checklist (adapted from
Young Adult Services Program, South Bend, Indiana)
- Employment Information Sheet (adapted NICHYC)
- Preparing for the Future: Transition to Adulthood (Illinois
Chapter of AAP)
- Questions to Ask Potential Adult Care
- Bridging the Gap Between Pediatric and Adult Services
- a guide
Kentucky Commission for CSHCN
Provides useful resources such
as one page teaching
sheets and a checklist
for independence for birth-21. You can use the list
to work toward health and independence for youth, families,
and people who work with them.
Kentucky TEACH Project
Kentucky’s Healthy & Ready to Work Project has various resources to assist young people and their families through the transition from school to work, pediatric to adult health care, and living at home to independent living. The Transition Checklist includes items from birth - 21 and can be used to work toward health and independence for children, youth, families, and people who work with them. Life Maps with coordinating one-page Teaching Sheets are available for age groups from birth – 21. Other documents include: Transition Health Care Tips, Finding Adult Health Care, Ten Steps to Job Success, Hiring and Using a Personal Care attendant, College Prep Timeline, and how to be insurance savvy. Also available are 19 Transition Newsletters that can be adapted for use.
Transition Question Competencies - Download
Here
This document provides questions for transition assessment and planning and a list of daily life skills needed to transition from school to work and to increase independence.
Transition Worksheet - Download
Here
This is a one-page sheet that allows you to summarize a
youth's living arrangements, transportation, education,
employment, medical information, etc.
Vocational
Rehabilitation Information
A Consumer Guide to Public Vocational Rehabilitation
(VR)
For every state, find out how many people found
jobs through the VR system, the hours they worked, the number
of people who used supported employment, and the average
cost per case-- to name a few. Now available at StateData.info:
data on individuals who completed VR services in fiscal
year 2003.
Postsecondary Options for Students
with Intellection Disabilities Teleconference
As more and more students with disabilities are included
in their classes, what will happen after 12th grade? Could
Students with cognitive disabilities continue their transition
education in college? Many are doing that now. Learn how.
Self-Employment for People with
Disabilities: A Free In-Service/Pre-Service Training Curriculum
for Rehabilitation Professionals
Developed and used nationwide by the Research
and Training Center on Disability in Rural Communities, this
versatile curriculum teaches business development basics
and describes the steps for helping a person with a disability
start a business. You can use it as a self-study course,
a workshop training, and/or as part of a rehabilitation
education curriculum.
Last Updated
July 22, 2008
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