Medical Homes in Washington
This page is designed to keep you informed about events and activities happening in Washington that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Washington Medical Home Team Contact:

Name: Kate Orville, MPH
Contact: Phone: 206-685-1279 | Email: orville@u.washington.edu

Washington Statewide Medical Home Implementation Plan - Promise to the State
www.medicalhomeinfo.org/grant/states/WASHIN~1.PDF

Washington State Medical Home Leadership Network: www.medicalhome.org/
A statewide network of volunteer, community-based teams who promote medical homes for children with special health care needs and their families. The composition of each team varies, but typically includes a pediatrician, a public health nurse, a family resources coordinator for children ages 0-3, and a parent. Team members are involved in a wide range of activities in their communities and statewide.

The Medical Home Leadership Network: Family, Health Care and Community Collaboration for CSHCN www.medicalhome.org/4Download/CHPW12004a.ppt (116 KB)
January 23, 2004, Community Health Plan of Washington 2004 Clinical Operations Meeting. Kate Orville, Washington State Medical Home Leadership Network.

Topics: Medical home definition, achieving medical homes for CSHCN by 2010, the Medical Home Leadership Network, community team activities, and how to get involved.

Family Leadership Champions Incentive Grant - Incentive Award FAQs
Goal: To implement a statewide Family Leadership Institute by building upon existing state planning activities to support the six performance measures. Funding will bring parents from around the state to a workshop on leadership and the use of CSHCN data.
For more information contact: Leslie Carroll
Phone: (360) 236-3504 | Email: leslie.carroll@doh.wa.gov


MCHB Medical Home Grant
www.medicalhomeinfo.org/grant/states/MCHB Grants/WashingtonMCHBgrant.pdf
Purpose: The purpose of the Project is to implement and evaluate a coordinated, sustainable, statewide
network of families and professionals to promote the availability and accessibility of medical homes for
children with special health care needs (CSHCN) and their families in Washington State.

MCHB Integrated Services Grant
www.medicalhomeinfo.org/grant/states/Integrated/Washington Integrated Services.pdf
Purpose: The purpose of the Washington Integrated Services Enhancement (WISE) for CSHCN Project
is to promote cross agency policies and infrastructure that will improve the access, availability and
continuity of services for children with special needs and their families. Changes in policy and
infrastructure will be instituted that will result in common enrollment, integration of data systems,
improved care coordination, and blended funding for services to children with special needs in our state.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

New Mental Health Foster Care Project
Bright Futures for Children and Youth in Foster Care (BFFC) is a new project funded by a grant through the Washington State Department of Health by the Health Resources and Services Administration (HRSA). The project goals are to:

• Increase mental health promotion activities for children and youth
• Develop a model training curriculum to teach foster parents about the mental health needs of children in foster care
• Increase awareness and understanding of mental health and the public mental health system that provides services for children in foster care
• Decrease the number of disrupted placements due to behavioral difficulties of children in foster care

Family Leadership Champions Incentive Grant
Goal: To implement a statewide Family Leadership Institute by building upon existing state planning activities to support the six performance measures. Funding will bring parents from around the state to a workshop on leadership and the use of CSHCN data.
For more information contact: Leslie Carroll
Phone: (360) 236-3504 | Email: leslie.carroll@doh.wa.gov

Genetics MCHB Grant
Purpose: Like many states, public health genetics in Washington began with newborn screening (NBS). Since the initiation and completion of the Human Genome Project, the public health system, including the NBS program, finds itself trying to anticipate how to best take advantage of the emerging science and technologies as well as deal with the economic, and social impacts (including legal and ethical) using limited resources. To best direct these resources, a State Genetics Plan was developed for Washington State. The four priority areas identified include: (1) Coordination and Coverage of Services, (2) Access to Quality Services, (3) Confidentiality/ Genetic Discrimination, and (4) Raising Awareness of Genetic and Disability Issues. The purpose of this project is to begin implementing the State Genetics Plan. Implementation of the State Genetics Plan will ultimately facilitate the integration of genetic services, including newborn hearing screening and newborn heel stick screening, into the existing statewide healthcare delivery system as well as the service system focused on children with special health care needs.

Healthy Tomorrows Partnership for Children Grants 2005-2010
Pre-Emptive Behavioral Health Team Intervention for At-Risk Children and Families
Pope’s Kids Place, Centralia, WA
Purpose: The overall goal of the project is to provide these at-risk children and their families coordinated, targeted psychiatric and psychological care and social support to ensure that they become successful, productive members of society. The project will also bring new clinical resources to the rural area. The overall goal of the project is to ensure that these at-risk children and their families receive the psychiatric and psychological care and social support they need to become successful, productive members of society. Go to: www.medicalhomeinfo.org/states/Downloads/WA HealthyTom Grant.doc for more information on this project.

For more information on the Healthy Tomorrows Grant Program http://www.aap.org/commpeds/htpcp/index.html For more information on this HTPCP project, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.wcaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.wafp.net/

Title V Children with Special Health Care Needs Program: www.doh.wa.gov/cfh/mch/CSHCNhome2.htm

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and strive to eliminate geographic and financial barriers to service access.

Name: Nancy Dalrymple
Contact: Phone: 253-395-6729 | Fax: 253-395-6737 | E-mail: nancy.dalrymple@doh.wa.gov

State Genetics Program: mchneighborhood.ichp.edu/wagenetics/index.html
The Genetic Services Section of the Washington State Department of Health has collaborated with a number of public and private agencies, organizations, and institutions at the local, state, regional, and national levels to implement public health core function activities (assessment, policy development, and assurance) pertaining to genetic health care. The documents presented here summarize many of the ongoing projects that have taken place in Washington State (1995-present)

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Sandy Loerch Morris
Contact: Phone: (360) 902-8490 | Fax: (360) 902-8497 | AltPhone1: (360) 902-7864
Email: loercsk@dshs.wa.gov
Web site: www1.dshs.wa.gov/iteip/

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities.

Name: Karen Walker
Contact: Phone: (360) 725-6080 | Fax: (360) 586-1631| Email: kwalker@ospi.wednet.edu
Web site: www.k12.wa.us/specialed

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Bonnie Sandahl, ICC Chair
Contact: Phone: (206) 298-9679 | Fax: (206) 284-7843 | Email: bsandahl@seattlechildrenshome.org

Resources/Documents
Nutrition Survey for Medical Home Team Members
The Washington State Dept. of Health CSHCN Program, the Medical Home Leadership Network staff, and the CSHCN Nutrition Network and Community Feeding Team staff are collaborating on a survey to identify how medical home and nutrition activities can support each other in Washington.

For more information about the survey go to: catalysttools.washington.edu/tools/webq3/?sid=450&owner=medhome

The Center for Children with Special Needs:www.cshcn.org
This site offers information and resources for parents and professionals who advocate and care for children with special health care needs.

Care Coordination Toolkit for Washington Professionals
This web-based toolkit is intended for professionals who coordinate care for children in Washington State. It provides one webpage access point to existing resources developed with funding from the Children with Special Health Care Needs (CSHCN) Program of the Washington State Department of Health. It includes links to county specific resource lists, Washington state resource guides, family organizing tools, family handouts, and adolescent transition resources, tips and forms.

You can view the toolkit and provide helpful feedback online at: www.cshcn.org/resources/coordinationtools.cfm

State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.aspWaivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

Bright Futures - Building Blocks for Early Learning

Date: June 6, 2006
Time: 9:00am - 4:00pm
Location: Hilton Seattle Airport and Conference Center

Opportunities to:

• Celebrate the success of the Bright Futures in Early Childhood Project
• Learn practical ways you can successfully use Bright Futures
• Hear from state leaders about Washington State's new early learning initiatives
• Engage in interactive dialogue as we look to the future

Guest Presentations From: American Academy of Pediatrics: Bright Futures Education Center and Pediatric Implementation Program

For more infomration go to: www.engr.washington.edu/epp/brightfutures/index.html

If you are passionate about children and their families having a healthy start in life, you don't want to miss this celebration!

New Quality Improvement Learning Opportunity for Medical Practices

The Washington State Children's Preventive Health Care Collaborative invites Medical Home Leadership Network Team primary care providers and community primary care colleagues to be among the 20 practices participating in the second year of the collaborative.  This year the Collaborative will focus on the adoption of fluoride varnish and the Ages and Stages Questionnaire within medical practices.  Medical practices can learn quality improvement methods that can be used to motivate clinical teams to implement operational improvements in their practices.

The Collaborative is funded by the Washington State legislature with additional support from local funding agencies.  The Collaborative is staffed by the King County Health Action Plan at Public Health-Seattle & King County and the UW Child Health Institute (home of the Seattle-branch of NICHQ, National Initiative for Children's Healthcare Quality).

For more information about this opportunity:

• Children's Preventive Health Care Collaborative Newsletter August/Sept)www.medicalhome.org/4Download/hc_collab.doc
• Why Should I Join the Washington State Children's Preventive Health Care Collaborative? www.medicalhome.org/4Download/whyjoin.doc
• Contact Nicole Reavis, MEd, at the Child Health Institute for more information. nreavis@u.washington.edu or (206) 616-3307.

Washington State Medical Home Leadership Network Conferences and Events: www.medicalhome.org/leadership/conferences_events.cfm

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Assuring Better Health and Child Development (ABCD) Program:
http://12.109.133.213/_catdisp_page.cfm?LID=2ED0001C-7622-11D6-BD1500A0CC76FF4C
The Assuring Better Child Health and Development (ABCD) Program is funded by the Commonwealth Fund, administered by National Academy of State Health Policy, and designed to assist states in improving the delivery of early child development services for low-income children and their families.

Family Corner

Family Voices: www.familyvoices.org/st/WA.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Washington (National Voice on Mental Health): www.nami.org/Template.cfm?Section=Your_Local_NAMI&Template=/CustomSource/AffiliateFinder.cfm&State=WA
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families

Mental Health Services/DSHS: www1.dshs.wa.gov/basicneeds/
To find services in your area:Select Outpatient Mental Health Services and read about programs and eligibility, then scroll down to the map of Washington and click on your county of residence to find clinics in your area. Note: These links are available at the WSSEC website. Just select Online Resources:Disability Organizations/Mental Health/WA State or National.

The Association for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/washington.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

Peer Support to Families of Children with Special Needs
Most parents like to talk about their children, and who better to talk with than another parent? Parents enjoy learning through sharing their parenting stories and experiences with one another. Many times, parents of children with special health care issues have even greater needs for this kind of supportive connection as they deal with unique issues not commonly shared by all parents. Their friends and family are often unable to provide first-hand guidance because they lack the personal experience and knowledge of the child’s special health care need. As a result, a parent may feel isolated and alone. As a health care provider, you are a valued source for information, resource and referral. Helping parents get connected with peer support can make an important difference in the lives of children with special needs. There are a number of organizations in Washington State that offer peer support to families of children with special needs. Two state-wide organizations are:

Washington State Fathers Network
The Washington State Fathers Network (WSFN) advocates for dads who have children with special needs. The focus of WSFN is supporting fathers so families can more effectively address the many challenges children with special health care needs or disability present. The WSFN provides opportunities for dads to connect with other dads in sixteen settings across the state, and through an extensive website with valuable connections to resources for dads and families. For more information, contact Greg Schell, Program Director:
425-653-4286
greg.schell@kindering.org
www.fathersnetwork.org

Washington State Parent to Parent
Washington State Parent to Parent (P2P) is a network of 29 community programs serving all 39 counties in the state. Activities include:

• Matching parents in one-to-one relationships with trained, experienced parents, based on similar diagnoses and family issues
• Providing personal support that differs from the support professionals provide
• Follow-up by the county coordinator on each P2P referral and match
• Social and recreational family events
• Support groups
• Information and education about disabilities and referral to services in the community
• Culturally-relevant services through ethnic outreach
• Training for parents who want to become Helping Parent volunteers