Medical Homes in South Carolina
 This page is designed to keep you informed about events and activities happening in South Carolina that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

South Carolina Medical Home Team Contact:

Name: Sarah Cooper
Contact: Phone: | Email: coopers@dhec.sc.gov
State Team Roster

The SC Dept. of Health and Environmental Control has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN
Contact Person: Sarah Cooper coopers@dhec.sc.gov
Goals and Objectives: The project's overarching goal is the creation of an inclusive, community-based systems of care for CYSHCN. Six goals address the six core outcomes for CYSHN. Comprehensive grant objectives support the integration of state and community based systems of services through the careful collection and analysis of primary and secondary data designed to support policy development, the creation of innovative partnerships across agencies and disciplines to implement needed organizational change, and comprehensive training strategies that include participant input designed to support and guide policy analysis and change.

South Carolina Statewide Medical Home Implementation Plan - Promise to the State
www.medicalhomeinfo.org/grant/states/SOUTHC~1.PDF

MCHB Medical Home Grant
 www.medicalhomeinfo.org/grant/states/MCHB Grants/South CarolinaMCHBgrant.pdf
Project Period: 3 years From: 3/31/02 to 3/31/05
The project’s primary purpose is to ensure all CSHCN receive ongoing, comprehensive care through an effective medical home that fully and respectfully includes the family, links efficaciously with sub-specialty physicians and with a wide range of community organizations offering services to this population. Education and training for physicians and families, will be a central theme of all grant activities and will help build capacity and infrastructure for expanding true medical homes statewide.

"A series of mentor medical home sites are being developed by the S. C. State Medical Home Team under the leadership of the Title V program in the S C. Department of Health and Environmental Control. The majority of project activities are funded by a three-year grant from HRSA that began in 2002. Key members of the State Medical Home Team include representatives of the state’s chapter of the American Academy of Pediatrics, Family Connection of South Carolina, Inc., the state’s Medicaid agency, and the University of South Carolina School of Medicine." (excerpt from Palmetto Pediatrics - A Case Study of Dr. Robert Walker's Medical Home Mentor Site)

  • Medical Home progress report (June, 2003) (www.medicalhomeinfo.org/states/state /Downloads/SC/SCprogress.doc)
  • Medical Home progress report (February, 2004) (www.medicalhomeinfo.org/states/state /Downloads/SC/Grant%20Summary%20Report%202004.doc)
  • Case study of the first South Carolina medical home mentor site (June, 2004)
    The Data: "Specifically, Medicaid data is used to examine office visits, inpatient hospitalizations, emergency room visits, pharmacy claims, and dental services. A comparison group matched on demographic, diagnostic, and health service utilization descriptors was created... The most dramatic difference, which was statistically significant, was the rate of emergency room visits resulting in inpatient hospitalizations for the case group from the pre-medical home quarters (1 4) to the medical home year quarters (5 8)." www.medicalhomeinfo.org/states/state /Downloads/SC/CaseStudy.pdf
  • Palmetto Pediatrics - A Case Study of Dr. Robert Walker's Medical Home Mentor Site
    "Palmetto Pediatric and Adolescent Clinic is a large practice that includes 16 physicians working in 4 office locations in the Greater Columbia Metropolitan Area in central South Carolina. The practice patient population is characterized as fairly educated and affluent with the majority of parents of children with special health care needs equipped and empowered to navigate their systems of care and advocate on their children’s behalf. Approximately 26% of practice patients are Medicaid eligible." www.medicalhomeinfo.org/states/state /Downloads/SC/PalmettoPediatricscasestudy.pdf
  • A Case Study of FREE - Families and Residents Educational Experience
    "The FREE program at the University of South Carolina School of Medicine is a collaborative effort between the Department of Pediatrics and Family Connection. The program teaches pediatric residents the knowledge and skills necessary to provide family-centered, community based care for children with special needs and their families. This program is unique in that families are the teachers and the community becomes the classroom." www.medicalhomeinfo.org/states/state /Downloads/SC/FREEdocument.pdf

Champions for Progress Center: State Incentive Award
Goal: to educate providers, parents, and agency representatives about the lessons learned through existing mentor medical home sites, to educate those groups about existing and potential resources that support the six national performance measures, and to expand data collection and commitment to the medical home concept and the systems changes necessary to achieve the six measures.

For more information contact:
Betsy Wolff
Family Connection of South Carolina
913 Woodland Drive
Columbia, S.C. 29205
Phone: (803)782-0238
Fax: (803)743-9052
Email: betsywolff@aol.com

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Healthy Tommorrows Partnership for Children Grant 2002-2006
Health Care Access for Western York County: Success By 6 of York County, Rock Hill, SC
Purpose: Establish affordable, accessible healthcare to children in York County, South Carolina. Through a collaborative partnership with public schools, county health clinic, Rock Hill Pediatrics, corporate sponsors, and additional grant funding, a countywide health clinic and nurse partnership program has been established. Four clinics have been established in York County, each operating in donated space one day per week. The aim of the network of health clinics is to increase preventive care, access to sick child care, and prenatal care to children and families in York County by providing a free health care clinics in four geographically dispersed areas of the county. For more information on this project go to: www.medicalhomeinfo.org/states/state /Downloads/SC/RockHill,%20SC%202002.doc

For more information on the Healthy Tomorrows Grant Program go to: www.aap.org/commpeds/htpcp/index.html For more information on HTPCP projects, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.scaap.org

American Academy of Family Physicians (AAFP) Chapter: www.scafp.org/

Title V CSHCN Program - Children’s Rehabilitative Services: www.scdhec.net/health/mch/cshcn/

Improving Care for Children with Special Health Care Needs: www.medicalhomeinfo.org/states/Downloads/SC/ImprovingCareforChildrenInsert.pdf
Children’s Rehabilitative Services supports a variety of approaches to improve health outcomes and quality of care for children with special health care needs. Two of the most important approaches are (1) advancing the medical home concept and (2) promoting strategies designed to meet the Six Core National Outcome Measures set by the Maternal and Child Health Bureau.

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.

Name: Tara Carroll
Contact: Phone: 803/898-0708
E-mail: carroltp@dhec.sc.gov
Web site: www.scdhec.net/health/mch/cshcn/programs/firstsound.htm

Baby Net - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Cheryl Waller, Interim Part C Coordinator
Contact: Phone: (803) 898-0591 | Fax: (803) 898-0613 | Email: wallercj@dhec.sc.gov
Web Site: www.scdhec.net/babynet/

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Norma Donaldson-Jenkins, 619 Coordinator
Contact: Phone: (803) 734-8811 | Fax: (803) 734-4824
Email: njenkins@sde.state.sc.us
Web site: www.myscschools.com/offices/ec/

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Norma Donaldson-Jenkins, ICC Chair
Contact: Phone: (803) 734-8811 | Fax: (803) 734-4824 | Email: njenkins@sde.state.sc.us

Name: Michael Jameson, ICC Vice Chair
Contact: Phone: (864) 579-7640 | Email: mej1965@att.net

Resources/Documents
South Carolina Educational Television stations (SC ETV) aired Special Children Special Care on Sunday, April 6.
An hour long documentary about South Carolinians special children and their stories of challenge and caring. A cooperative effort of South Carolina ETV and the State Medical Home Team.

  • Minimal broadband connection and Modem connection files are available to view the Introduction and Full Broadcast at www.medicalhomeinfo.org/states/state/south_carolina.html#res
  • You can download the flyer about the medical home broadcast on SC ETV and share this information with family and friends. You can also download the viewer guide for Special Children, Special Care

If you'd like to purchase this program for your own library, visit SCETVStore.org (scetvstore.org/splash.html) and click on New Releases or enter "special care" in the search box.

For more information you can contact www.familyconnectionsc.org.

A Provider's Introduction to Strengthening Medical Homes for CSHCN - www.medicalhomeinfo.org/states/state /Downloads/pdfs/Providers.pdf

State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

  • State Newborn Screening Program Links
  • State Genetics Program Links
  • Regional Genetics and Newborn Screening Collaborative Links
  • Newborn Screening State Contact Fact Sheet

Family Corner
Resources and Materials Available on the South Carolina Medical Home State Page
What is a Medical Home: How Can it Help Your Child with Special Needs - Brochure

South Carolina Resources for CSHCN - Flyer

15 Keys for Kids Key Contacts by Greenville Counties Flyer

Children Are Special Newsletter. From the Parent/Consumer Advisory Council for the Division of CSHCN

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program | Babies Diagnosed with Hearing Loss
www.medicalhomeinfo.org/screening/State/south_carolina.html

Family Connection of South Carolina www.familyconnectionsc.org
A support network for families who have children with developmental delays, disabilities or chronic illnesses. As the statewide parent-to-parent organization with offices in several cities, Family Connection helps thousands of children in South Carolina reach their potential by providing parent-to-parent connections, linking families to community resources, and sponsoring a number of educational and support programs. Programs are free and confidential. As parents of children with special needs, Family Connection parents know the value of talking with another parent.

Whether it’s about your child’s disability or special health care need or other issues you or your family may have about your child, call Family Connection for a parent-to-parent match. Family Connection also offers support groups, family social events, programs for couples and for brothers and sisters of children with special needs, and training programs for parents and professionals. Family Connection parents live throughout South Carolina. Support Parents have completed 12 hours of training as volunteers to better support and assist other parents.

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

Advocacy and Support Organizations
Family Voices: www.familyvoices.org/st/SC.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of South Carolina (National Voice on Mental Health): www.namisc.org
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families
Parents Reaching Out to Parents of South Carolina, Inc: www.proparents.org/
Provides information and training about special education law to families of children with disabilities and special needs. Not income based.

The Association for Retarded Citizen (Arc) Family Resource Guide http://www.thearc.org/familyguide/southcarolina.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /south_carolina.html

Last Updated August 10, 2006