Medical Homes in Oregon
 This page is designed to keep you informed about events and activities happening in Oregon that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Oregon Medical Home Team Contact:

Name: Jim Ledbetter, MD -Director, Oregon Center for CYSHCN
Contact: Phone: 503-494-6961 | Email: ledbettj@ohsu.edu

Oregon Medical Home Web site: cdrc.ohsu.edu/oscshn1/medicalhome/

The Oregon Health & Sciences University has been awarded an MCHB State Implementation Grant for Integrated Community Systems of Services for CSHCN - Abstract
Contact Person: Robert E. Nickel, M.D. nickelr@ohsu.edu
Goals and Objectives: This project will address all 6 Title V Block Grant performance measures, will focus on “adequate public and/or private financing of needed services,” “early and continuous screening, evaluation and diagnosis,” and “family-professional partnerships,” and will build on current Title V activities. The project’s objectives for these 3 measures are:
Objective 1: Families and youth are informed consumers of health care
Objective 2: Communities plan to assure adequate financing of health services for CYSHN
Objective 3: Children are screened early and continuously for developmental/ behavioral differences
Objective 4: Family/professional partnerships are developed in health care practices and communities
Objective 5: Providers design services to meet the needs of culturally diverse groups

Oregon Medical Home Network
The Oregon Medical Home Network consists of six primary care practices and the Office of the Oregon Medical Home Project at CDRC who have participated in a 3-year project designed to improve services for families with children and youth having special health care needs.

A video is available where you can learn more about the network, meet the community teams, and hear from pediatric clinicians and families on the importance of having a medical home.

Oregon Statewide Medical Home Implementation Plan - Promise to the State Adobe PDF
www.medicalhomeinfo.org/grant/states/Oregon~1.pdf

MCHB Medical Home Grant: www.medicalhomeinfo.org/grant/states/MCHB Grants/OregonMCHBgrant.pdfbstract
Purpose: to promote the provision of comprehensive services to CSHN through a Medical Home by
building partnerships among community professionals and parents and facilitating changes in the management of CSHN in primary care offices throughout Oregon.

AAP CATCH Medical Home Planning Grant 2001-2002
Purpose: This project seeks to expand comprehensive services to children with special health care needs (CSHCN) living in remote communities in central and eastern Oregon. Medical homes will be established with primary health care professionals who are ideally suited to coordinate the multiple services for CSHCN. However, many remote central and eastern Oregon counties are federally designated as health professional shortage areas and primary health care providers lack sufficient information about community services and lack evidenced-based knowledge of specific health concerns. Expanding the network of physicians providing medical homes in the region will establish a continuum of comprehensive services as well as create partnerships among the region’s medical specialists. Changes in the management and delivery of health care services to CSHCN will be facilitated in primary care offices, county health departments, and local school districts. Utilizing the existing Central Oregon Hospital Network (CONet) telemedicine network, rural residents and family practitioners will be able to remain in their home communities and have clinical consults and diagnoses performed by medical specialists located hundreds of miles away.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

Family/Professional Partnerships Champions Incentive Grant
Goal: To enhance and promote family involvement and leadership in order to build partnerships between families and programs and to facilitate further development of family/professional partnerships within local communities.
For more information contact:Becky Adlemann
Phone: (503) 494-7657 | Email: adlemann@ohsu.edu

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.oregonpediatricsociety.org/

American Academy of Family Physicians (AAFP) Chapter: www.oafp.org/

Title V CSHCN Program - Oregon Services for Children with Special Health Needs (OSCSHN): www.ohsu.edu/outreach/cdrc/oscshn/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally

Early Hearing Detection & Intervention (EHDI) Contact(s):State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Amy Rosenthal, MA, CCC-A
EHDI Program Coordinator
Contact: Phone: 971/673-0268 | Fax : 971/673-0251
E-mail: amy.rosenthal@state.or.us
Web site

Early Intervention/Part C Coordinator:The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Jennifer Olson, Part C Coordinator
Contact: Phone: (503) 378-3600 x2338 | Fax: (503) 373-7968
Email: jennifer.olson@stae.or.us
Web Site: www.ode.state.or.us/sped/spedareas/eiesce/eiecse2.htm

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Nancy Johnson-Dorn, 619 Coordinator
Contact: Phone: (503) 378-3600 x2339 | Fax: (503) 373-7968 | AltPhone1: (503) 378-2892
Email: nancy.johnson-dorn@state.or.us
Web site: www.ode.state.or.us/sped/spedareas/eiesce/index.htm

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Pamela Deardorff, ICC Chair
Contact: Phone: (503) 838-8780 | Fax: (503) 838-8150
Email: deardop@wou.edu

Resources/Documents
Healthy Ready to Work:
cdrc.ohsu.edu/oscshn1/medicalhome/providers/transition.html

State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

  • State Newborn Screening Program Links
  • State Genetics Program Links
  • Regional Genetics and Newborn Screening Collaborative Links
  • Newborn Screening State Contact Fact Sheet

No information is currently available for this category.

Family Corner
Family Voices: www.familyvoices.org/st/OR.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of Oregon (National Voice on Mental Health): www.nami.org/oregon/
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

The Oregon Parent Training and Information Center: www.open.org/~orpti/
Oregon PTI's mission is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with disabilities. Oregon PTI provides programs and services throughout the state.

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program
www.medicalhomeinfo.org/screening/State/oregon.html

State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

http://www.medicalhomeinfo.org/states/state /oregon.html

Last Updated May 4, 2007