Medical Homes in North Dakota
This page is designed to keep you informed about events and activities happening in North Dakota that will help improve access to medical homes for children with special health care needs (CSHCN).

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

North Dakota Medical Home Team Contact:

Name: Tamara Gallup-Millner - Unit Director, Children's Special Health Services
Contact: Phone: 701-328-4814 | Email: sogalt@state.nd.us
State Team Roster available at:
www.medicalhomeinfo.org/model/downloads/State Teams/North Dakota Medical Home Team.doc

Excerpt from North Dakota’s Application Plan For Fiscal Year 2005
Maternal and Child Health Services Block Grant Program

FPM # 3: The percent of children with special health care needs age 0 to 18 who receive coordinated, ongoing, and comprehensive care within a medical home.

Application/Annual Plan FFY ’05: 10/01/04 – 09/30/05

• CSHS will provide information on medical homes for CSHCNs to providers and families.
• CSHS will collaborate with partners to further the medical home concept and practice in North Dakota. Partners could include Indian Health Service, ND Chapter of the American Academy of Pediatrics, family organizations, providers, Early Childhood Comprehensive Systems, Medicaid PCP Program, Early Hearing Detection and Intervention, etc.
• CSHS will monitor the medical home status of children receiving care coordination services through CSHS and Medicaid-eligible children.
• Increase the percentage of children receiving CSHS care coordination services with a comprehensive, written service plan.

AAP CATCH Medical Home Planning Grants 2003-2004
Families, Schools, and Medical Professionals Partnering for North Dakota's Children
Contact: Mayra Quanrud, MD. Jamestown, ND
Purpose: A team of parents, state Title V staff and a pediatrician will provide information to three rural communities' primary medical care staff, families and school personnel about the medical home concept. The three communities were chosen because each has 16% or more of the total school population receiving special education services.
Activities: An assessment regarding knowledge of medical homes and the need for medical homes will be sent out before each meeting. Results of the needs assessment will be shared at the meetings and the team will facilitate discussion regarding the findings.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

No information is currently available for this category.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: ndaap.org/

American Academy of Family Physicians (AAFP) Chapter: www.ndafp.org/

Title V CSHCN Program - Children's Special Health Services (CSHS):
www.state.nd.us/humanservices/services/medicalserv/cshs/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Sue Burns
Contact: Phone: 701-328-2436 | Fax: 701-328-2359 | E-mail: soburs@state.nd.us
Web site: ndcpd.misu.nodak.edu/1stsounds/

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Debra Balsdon, Part C Coordinator
Contact: Phone: (701) 328-8936 | Fax: (701) 328-8969 | Email: sobald@state.nd.us
Web site: www.ndearlyintervention.com/

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Marilyn Brucker, 619 Coordinator
Contact: Phone: (701) 328-2714 | Fax: (701) 328-4149
Email: mbrucker@mail.dpi.state.nd.us
Web site: www.dpi.state.nd.us/speced/index.shtm

State Interagency Coordinating Council (ICC) Chairs:T
he ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Peg Crane, ICC Chair
Contact: Phone: (701) 824-2871 | Email: pdcrane@ctctel.com

Name: Roxane Romanick, ICC Vice Chair
Contact: Phone: (701) 258-7421 | Email: romanick@bis.midco.net

Resources/Documents
State Waiver Information:www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

• State Newborn Screening Program Links
• State Genetics Program Links
• Regional Genetics and Newborn Screening Collaborative Links
• Newborn Screening State Contact Fact Sheet

Family Corner
Family Voices: www.familyvoices.org/st/ND.htm
Partnering with professionals and families to advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent.

NAMI of North Dakota (National Voice on Mental health): www.nami.org/Template.cfm?Section=Your_Local_NAMI&Template=/CustomSource/AffiliateFinder.cfm&State=ND
Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.

Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site offers informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

The Association for Retarded Citizen (Arc) Family Resource Guide www.thearc.org/familyguide/northdakota.doc
This guide is written for families raising children with mental retardation and related developmental disabilities. It tells families about benefits, supports and services in their state that might help their child.

Early Hearing Detection & Intervention (EHDI) Information for Parents:
Description of EHDI Program
www.medicalhomeinfo.org/screening/State/north_dakota.html

Pathfinder / NDPASS: www.pathfinder.minot.com/index2.html
The Pathfinder PTI views parents as full partners in the educational process and a significant source of support and assistance to each other. The PTI's are funded by the Office of Innovation and Improvement, Office of Special Education Programs (OSEP), U.S. Department of Education, "to provide training and information to parents to enable such individuals to participate more effectively with professionals in meeting the educational needs of children with disabilities," as stated in PL 98-199.