Medical Homes in Kentucky
This page is designed to keep you informed about events and activities happening in Kentucky that will help improve access to medical homes for children with special health care needs (CSHCN).
Medical Home Initiatives
This section provides
information on state medical home initiatives/programs. States that are
a part of the mentorship network will have a "Promise to
the State" which outlines how they will achieve ensuring that all
children have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to achieve and measure
success for all CSHCN.
Kentucky Medical Home Team Contact:
Name: Eric Friedlander - Director, Commission for Children with Special Health Care Needs
Contact: Phone: 502-595-4459 ext. 271 | Email: eric.friedlander@ky.gov
Healthy Tomorrows Partnership for Children Grants 2005-2010
Family Center for Healthy Futures
Family Care Center, Lexington, KY
Purpose: The goals of this project are to empower families and
provide support to families on solving important family resource needs.
The Family Center for Healthy Futures will provide within a pediatric
practice resource support for families that include housing, education,
food, clothing, employment, parenting skills, bilingual services, family
health care, transportation, childcare, and financial assistance. Meeting
the needs of families will leave them with time energy, and resources
to meet the demands of parenting and improve the health of their children.
Go to: www.medicalhomeinfo.org/states/Downloads/KY
HealthyTom Grant.doc for more information on this project.
For more information on the Healthy Tomorrows Grant Program go to: http://www.aap.org/commpeds/htpcp/index.html For more information on this HTPCP project, please e-mail your name, address, telephone, and fax numbers with your specific request to healthyt@aap.org.
Related Grant Initiatives
This section provides information on current
state grants that are working on medical home initiatives. This includes
the grant abstract as well as key contacts for the grant.
Family Support Planning Grant
The US Department of Health and Human Services, Administration for Children
and Families, has awarded the Commission for Children with Special Health Care
Needs (CCSHCN) a $100,000 family support planning grant.
The grant will support CCSHCN, Seven Counties Services,
Inc. and Kentucky Special Parent Involvement Network, Inc.
(KY-SPIN) in developing a transition
resource center for persons with disabilities and their
families in the Louisville Metro's Neighborhood Place one-stop family centers.
The goal of the center is to support self-determination among individuals with
disabilities and their families across all ages and
throughout their lifespan.
The resource center will assist persons with disabilities plan for their futures,
make choices about their daily lives, and participate fully in community life.
For children and youth with disabilities, this means being
successful in school and transitioning from school to work and to independent
living. The center will assist the families of adult children with developmental
and/or physical disabilities in which the parents or
caregivers are older, in planning for the future needs of their children.
A number of state and local agencies and organizations have agreed to participate
in the development, including: Louisville Metro Cabinet for Health and Human
Services, Jefferson County Public Schools, Kentucky Department for Community
Based Services, Kentucky Council on Developmental Disabilities, Kentucky Division
of Protection and Advocacy, Council on Mental Retardation, Center for Accessible
Living, Metro United Way, South Louisville Community Ministries, University
of Kentucky's Interdisciplinary Human Development Institute, and the Department
for Employment Services. www.kyspin.com/
Partners in the State
This section provides information on who in the state (individuals
and agencies) are working together to create medical homes for children.
American Academy of Pediatrics (AAP) Chapter:www.kyaap.org/
American Academy of Family Physicians (AAFP) Chapter: www.kafp.org
Title V CSHCN Program "Commission for Children with Special Needs" http://chfs.ky.gov/ccshcn/default.htm
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn
hearing screening, develop effective tracking and follow-up as a part
of the public health system, promote appropriate and timely diagnosis
of the hearing loss, prompt enrollment in appropriate Early Intervention,
link newborns to a medical home and strive to eliminate
geographic and financial barriers to service access.
Name: Michelle King
Contact: Phone: 502-595-4459 ext. 323 | Fax: 502-595-3403
E-mail: michelle.king@mail.state.ky.us
First Steps - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is
a federal grant program that assists states in operating a comprehensive
statewide program of early intervention services for infants and toddlers
with disabilities, ages birth through age 2 years, and their families.
Name: Diane G. Haynes, Part C Coordinator
Contact: Phone: (800) 232-1160 x308 | Fax: (502) 595-4673
Email: dianeg.haynes@mail.state.ky.us
Web site: chs.ky.gov/commissionkids/firststeps/
Commission for Children with Special Health Care Needs: chs.ky.gov/commissionkids/
Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:
Name: Barbara Singleton, 619 Coordinator
Contact: Phone: (502) 564-7056 | Fax: (502) 564-6952
Email: bsinglet@kde.state.ky.us
Web Site: www.education.ky.gov/
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood
special education and early intervention programs for children with disabilities,
assists in the development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies in achieving full
participation, coordination, and cooperation for implementation of statewide
system.
Name: Janet Barry, ICC Chair
Contact: Phone: (606) 329-8588 x4088 | Fax: (606) 329-8195
Email: jbarry@pathways-ky.org
Resources
Title V CSHCN Program "Commission for Children with Special
Needs" Contact Information and Overview: championsforprogress.org/resources/stateDirectory/Kentucky_2002.pdf 
State Web Site: commissionkids.state.ky.us/
Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows
state Medicaid agencies to apply for and receive permission from HCFA
to provide services not otherwise covered by Medicaid and/or to do
so in ways not described by the Social Security Act. Most Medicaid
managed care programs require Waivers. The Waivers, which can differ
greatly, are known by their numbers (1115, 1119), or as home-and community-based,
or as Katie Beckett Waivers.
Educational Initiatives
This section provides information on training
initiatives on the medical home. Some states will discuss their outreach
projects in relation to physicians, families, and the community.
No information is currently available for this category.
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative Links
- Newborn Screening State Contact Fact Sheet
Family Corner
Family Voices:
www.familyvoices.org/st/KY.htm
Partnering with professionals
and families to advocate for health care services that are family-centered,
community-based, comprehensive, coordinated and culturally competent.
NAMI
of Kentucky (National Voice of Mental Illness): ky.nami.org/
Education, advocacy and support for persons
with brain disorders (mental illnesses) and their families.
Family Village: www.familyvillage.wisc.edu/index.htmlx
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with cognitive and other disabilities,
for their families, and for those that provide them services and support.
This site offers informational resources on specific diagnoses, communication
connections, adaptive products and technology,adaptive recreational activities,
education, worship, health issues, disability-related media and literature,
and much, much more!
KY-SPIN, Inc: www.kyspin.com/
Current programs include: SPIN PTI (SPIN Parent Training
& Information Project)uses a “Families Training Families”
model of training, information and support to families of children with
all types of disabilities on the issues of laws, rights, listening and
communication skills, and understanding their child’s disabilities.
P.A.S.S. (Parents Accessing Systems of Support),is a
program serving Jefferson County which focuses on young people from the
ages of 14-21, who are non-diploma bound students with severe disabilities
in low incident special education classes. P.A.S.S. will give families
a knowledge base that allows not only entry into programs and services,
but options that give young people with disabilities a voice in their
own destiny. Through advanced planning and education, families can transition
from school to adult services without interruption in services.
Kentucky Cares Web site: kycares.ky.gov/
KyCARES is an online services/information directory and guide for Federal,
State and Community Providers which can help you connect with providers which
offer basic services like housing, food, childcare, transportation, benefits
information and much more. From home, the office, the local library or anywhere
you can access the Internet, the answers to your service questions are at
your fingertips
Families Information on Disabilities FIND: www.findoflouisville.org/
FIND of Louisville addresses the need to enhance the knowledge and skills of
parents of children with disabilities, to ensure their effective participation
in decisions regarding educational and related services.
Youth Transitions Resources: chs.state.ky.us/commissionkids/transition.htm
Helping young people move from school to work, pediatric to adult health care
and living at home to independent living.
State Resources on the Internet: www.medicalhomeinfo.org/states/index.html#res
Note: The information provided on the state pages was submitted by the state
medical home teams.As this is not an exhaustive list, please let us know if
you have additions for your state resource page. You can contact us at: medical
home@aap.org.
http://www.medicalhomeinfo.org/states/state
/kentucky.html
Last Updated
April 30, 2007