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Newborn Screening ACT Sheets for Pediatricians
www.acmg.net/resources/policies/ACT/condition-analyte-links.htm 
This website has a table describing the interrelationships between the conditions screened in newborn screening laboratories and the markers (analytes) used for screening. For each marker(s), there is 1) an ACTion (ACT) sheet that describes the short term actions a health professional should follow in communicating with the family and determining the appropriate steps in the follow-up of the infant that has screened positive, and 2) an algorithm that presents an overview of the basic steps involved in determining the final diagnosis in the infant.

Newborn Screening Task Force Report

• Preface
• Executive Summary
• Report
  

GAO Report on Newborn Screening: Characteristics of State Programs (March 2003) www.gao.gov/new.items/d03449.pdf

Compendium of Newborn Screening Abstracts
As a companion piece to the Newborn Screening Task Force report, a compendium of newborn screening abstracts has been developed. This document (Updated October 2002 and available as a Word document or as an End Note library includes all of the references from the Task Force report, as well as other more up-to-date references and abstracts. This compendium will be updated as relevant articles on the topic of newborn screening are published.

Issue Report: financing newborn screening system in an era of change. March 2005; Washington, DC.

Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children (ACHDGDNC)
http://www.mchb.hrsa.gov/programs/genetics/committee/default.htm ACHDGDNC was established to advise and guide the Secretary, US Department of Health & Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and programs for effectively reducing morbidity and mortality in newborns and children having or at risk for heritable disorders.

Association of State and Territorial Health Officials
Issue brief: state strategies to promote coordination of the newborn screening system. August 2004; Washington, DC

2003 GSB/MCHB Integration of Newborn Screening & Genetic Service Systems with Other Maternal and Child Health Systems.
Summary of the October 15-16, 2003 conference.

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Last Updated February 5, 2008