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Learning Collaboratives - Medical Home

...to narrow the gap between what is and what can be for the growing population of children and youth with special health care needs. - NICHQ

NICHQ Medical Home Learning Collaboratives
The National Initiative for Children’s Healthcare Quality, Inc. (NICHQ) with support from the US Maternal and Child Health Bureau ran two National Medical Home Learning Collaboratives. These fifteen-month programs helped facilitate the improvement of care for the growing population of children and youth with special health care needs by:

One Practice Teams' Story of Achievements and Insights: Chapel Hill Pediatrics Presentation

  • Almost 600 CSHCN identified in registry and in Medical Manager with complexity scores
  • Care Coordinator does Pre-visit Contacts for 11 docs; from 3 hrs./wk to full-time
  • 93 % of Families find PVC’s helpful
  • Printing 3rd ed. CSHCN pocket phonebook; 3rd edition of transition referral options
  • Year 3 of tracking improved patterns of ED and after-hours utilization
  • Boardmaker used for communication-impaired CSHCN
  • Planning for Statewide MHLC
  • Docs re-educated on coding for CSHCN
  • Title V 3 year grant on MH Implementation
  • Creating pilot project with BCBS around metrics for Medical Home measurement
  • Held forum with CHPA, Parents and School Admin. around partnering for CSHCN in schools
  • Held “Listening Session” with CHPA parents to identify needs
  • Streamlined “checkout” process
  • Joining NC Medicaid Managed Care Network
  • Computer Access to Duke/UNC

2003 Participants
This 15-month Learning Collaborative supported 11 state Title V agencies, each working with three primary care practices in their state to implement the Medical Home model. In 2003, the following states applied to participate: Colorado, Connecticut, Florida, Louisiana, Michigan, New York, + North Carolina, Ohio, Oklahoma, Utah, Virginia, Wisconsin

2005 Participants
This 15-month Learning Collaborative supports 9 state Title V agencies, each working with three primary care practices in their state to implement the Medical Home model. In 2005, the following states applied to participate: District of Columbia, Illinois, Maine, Maryland, Minnesota, Pennsylvania, Texas, Vermont, West Virginia.

Collaborative Mission

The Collaborative mission is to transform care for CYSHCN and their families so that:

  • Care is coordinated, comprehensive, and satisfying both to deliver and receive.
  • Care is planned, monitored and measured throughout childhood and transitioned smoothly into adulthood.
  • Community-based pediatricians, family physicians, nurse practitioners, and physician’s assistants are active co-managers with specialists.
  • Children and their families are supported as the primary caregivers, decision-makers, and lead partners in the health care process.
  • Community resources are integrated into the care process, and community cultures are effectively supported.

Strategy
This Learning Collaborative will operate over a 15-month period. Title V agencies and primary child health care offices will work together with faculty from the National Center for Medical Home Initiatives at the American Academy of Pediatrics, the Center for Medical Home Improvement, and NICHQ with support from the US Maternal and Child Health Bureau to improve care for CYSHCN and their families.

Teams from participating primary care organizations will achieve dramatic results by the application of effective quality improvement methods (the Model for Improvement and methods for spread of innovation). In addition, Title V agencies will develop the internal capacity to support teams as they learn and put into action improvements over the life of the Collaborative and beyond. As part of this process, Title V programs will increase their understanding of community-based primary care practice and statewide primary care professional organizations.

Vitally important to the success of this Collaborative is the concept of “spread,” the dissemination of innovation. This Collaborative will devote substantial time, energy, and learning to strategies for Title V agencies, in conjunction with state-level pediatric and family practice professional organizations and family advocacy groups, to successfully expand breakthroughs and improvement to primary child health care practices

Expectations
Each Title V agency recruits 3 practice teams; NICHQ encourages state Title V agencies to work closely with their state AAP and AAFP chapter to identify interested practices. Both tiers of teams—Title V and primary care practice—complete Pre-work before attending a national two-day Learning Session to learn best practices, plan tests of change, analyze their progress, and develop strategies to overcome barriers to change. Learning Session 2 is conducted using distance-learning technology, and Learning Session 3 is conducted as a second face-to-face two-day training. Throughout MHLC II, teams report on and share progress monthly. NICHQ uses these data along with other qualitative measures and before and after assessments to evaluate the Collaborative.

Summary of findings, conclusions, and recommendations from the 2003 Project

The project was overwhelmingly successful. Examining feedback from a variety of sources collected through surveys, interviews, evaluations, and monthly data, shows the overall response to the collaborative on the part of Title V teams, practice teams and faculty was very positive. Connections have been made between Title V and primary care practices that simply did not exist before; and improvements in the delivery of care to children with special health care needs and their families have come about as a result of those connections.

As a result of their participation in the Medical Home Learning Collaborative, nearly 60% of the practices in the project report that they are partnering with families to assess needs, plan care, and set goals. Nearly 70% report improvements related to access to providers. Half of the practices are now maintaining some sort of registry of CSHCN. At the end of the collaborative, faculty unanimously agreed that the model was highly successful in moving these states forward to build lasting medical homes for children with special health care needs.

The most dramatic outcome results were seen in unplanned hospitalization and Emergency Department visits (ED). Unplanned hospitalization also dropped 13-18% and the decline was statistically significant (p<.05). ED visits were reduced overall; one site experienced a 20% drop, which was suggestive. For more information click here.

Forms

Presentations
Using Learning Collaboratives to Implement the Medical Home in Primary Care
Presented at the CATCH & Medical Home National Conference - July 16, 2004
Deborah Allen, ScD, MS (38.5 KB)
Associate Professor
Health and Disability Working Group at Boston University School of Public Health

W. Carl Cooley, MD, FAAP (5.15 MB)

Co-Director, Center for Medical Home Improvement
Medical Director, Crotched Mountain Rehabilitation Center
Molly Gatto
Project Coordinator
Educating Physicians in Community Integrated Care (EPIC IC)
Pennsylvania Chapter, AAP

Charles Homer, MD, MPH, FAAP (385 KB)
Chief Executive Officer
National Initiative for Children's Healthcare Quality

Alan Kohrt, MD, FAAP* (4.12 MB)

General Pediatrician
Children's Hospital of Philadelphia

If you would like more information on this project contact Emily Crites at ecrites@nichq.org with any questions.

Or you can find out more about this opportunity by clicking here for the project overview.

These training programs are not directly managed, nor sponsored by the national American Academy of Pediatrics. Local organizations are responsible for hosting and sponsoring these programs.

Last updated August 7, 2008

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